Helminthic therapy and Ehlers–Danlos syndromes (EDS)

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Ehlers–Danlos syndromes are a group of genetic connective-tissue disorders, of which the hypermobile form is the most common.

Since they have a genetic cause, it had been thought unlikely that Ehlers–Danlos syndromes would respond to helminthic therapy, but it appears that this treatment can help with any autoimmune, inflammatory or allergic conditions that are present alongside the EDS.

And this is what happened to naturopathic doctor, Doni Wilson, who finally decided to try helminthic therapy after years of suffering severe EDS-related headaches and allergies.

By using a very gentle dosing protocol, Dr Wilson was able to successfully use hookworms to treat her longstanding allergies as well as gain extra energy and enjoy improved sleep.

Two months after my first hookworm treatment I was able to clean my house with minimal reactions to dust. Three months in and I experienced ZERO reactions. My normally severe allergies while deep cleaning or decluttering my house and basement were gone.

So I tested one more thing—gluten. After 15 years of avoiding gluten, I ate ¼ cup of gluten pasta. No headaches, no migraines, no pain — NOTHING.

The results of only three months of hookworm therapy are, too me, astounding—both as an ND and as a lifelong patient looking for effective relief. As a bonus, I experienced an increase in energy and a consistent better night’s sleep. [1]

Others with EDS have reported similar results.

I've been using helminths for years for what I thought was an AI disease, only for me and my kids to be diagnosed with Ehlers–Danlos. It's genetic but helminths definitely make life doable vs otherwise. NA is the helminth I have used most successfully off and on over an 8 yr period. There is no medicine that works anywhere near as well as NA. Because I have mast cell issues, HDC cause me a few problems. Same with TTO, but NA stops my fatigue, POTS, GI issues, sleep apnea, MCAS, inflammation and inter-cranial hypertension, along with the hormone issues that arise when your pituitary gets smashed by the inter-cranial pressure. Does wonders for my mental health also. Same for my kids. Anxiety is a big problem in Ehlers–Danlos in general. (Edited from three posts: [2] [3] [4].)

The same self-treater has also reported that helminthic therapy has greatly helped her joints by regulating her hormones, which she says directly affect joint laxity. [5]

Several others have reported benfits, for example:

I have a friend who successfully uses NA for herself and her kids for the associated issues of ED. It makes life much better although it doesn't change the underlying genetic disorder. [6]